Sunday, July 10, 2011

Running and Fundraising

I've been a bit quite in here of late. Sometimes you just have to let things slide.

I'm in training for the Sydney City to Surf which I planning on running with my big boy Jenson.

This is where you'll find me at the moment trying hard to raise funds for the Miracle Babies Foundation

Pop over and check it out. Even better donate and help me reach my target!

Happy Days :) Cathryn

Sunday, June 12, 2011

Telling Stories-What to Say?

I've been a bit quiet on here and will be continue having a low profile as I'm seriously working on my book.

Today I've been thinking about my story. What am I saying? What do I need the reader to know? What do they want to know?

I know they don't want to read me going on and on about being bored in hospital. I know they'll want to read about Bless-ed T's birth. As I write and move about in my world I met people with a similar story to mine and I met people with stories which are nothing like mine. I know I'm telling my story. But what do people really want to know?

If you told your story about your high risk pregnancy, your baby's premature birth or any situation that had a dramatic effect on your life, what would you want others to know?

What would be the meaning of your story?

Sunday, March 20, 2011

Green for Premmies


Fabulous idea!
Lil Aussie Prems which is Australia's premier forum for families during their NICU/SCN journeys and beyond are having a Wear Green for Premmies Day.

Grab yourself a green wrist band to wear on Wednesday 6th April and show your support for premature babies and their families

For more information go to Lil Aussie Prems

Have a great weekend,

Cathryn

Saturday, February 19, 2011

The Great Debate

This is the first time I've posted about anything controversial. All week I've been watching a debate on Facebook about an event called 'Poppi's Rule'. This event is organised by a family and their friends who lost a baby due to preterm birth at 22+3 weeks gestation. The story is sad, heart wrenching and traumatic. Around Australia, every day babies are born too early. Born before they're due and unfortunately some are born before the magic 24 week gestation line where viability can't be considered for the baby.

Viable- what a cold cruel word for the use in terms a small baby.

I heard the word viable often waiting from 19 weeks gestation in hospital. Waiting to see if I'd reach the 24 week line. It was near a 5 week wait. I wasn't supposed to, medically, make it.

I made it to 24 weeks. And beyond.

I wondered in the last week before the 24 week line what would happen? What if something happened when I was say 23+3 weeks, what would they do? To me this was a huge grey area. I know of babies who have survived at this gestation.

Before 23 weeks I'd resigned myself to the fact that my baby would not make it. There was a part of me that didn't want him or her to make it if born then. The battle would have been huge and the long term side affects too unknown if he or she survived. The chances of survival were very very slim especially with my complications. Sometimes things are simply not suppose to be and that is your journey, your sidetrip in life. It is what you're here to face and learn from. Take the lesson and grow.

Back to the Facebook event. Oh my! The emotions are running high! There is a pro page and now an against page.

The 'for' team is wanting the law change so all parents of babies born between 20-24 weeks have the right to request for their babies to be assisted in a fight for life and that every hospital be equipped to be able to do this.They are simply telling their story. Using emotion and their experience of losing a baby so tragically.

The 'against' side is simply against the above. From what I can tell the against side are mainly people who have had first hand experience of prematurity and the NICU world. They are using experience and medical knowledge to voice their case.

Me, well I'm not 'joining' either side.

The pros have their issues. They aren't providing information to the people joining their event. What is the current law?? What does it state?? What is your new rule??? Are they fighting federal or state law?? So you have a 200000 names on Facebook, what are you going to do with them?? It is pointless if you don't have organisations and foundations of premature babies, obstetric professionals, NICU specialists and hospitals on your side.

The pros are grieving and want answers for what happened and perhaps there does need to be a review of the law.The main thing they are achieving is raising awareness of the suffering of families around Australia.

The against are trying to let people know the facts. Being born before 24 weeks is NOT about being born small. The NICU journey, no matter what gestation, is not for the fun of it or about the baby being too small. These babies are born too soon. They are born too immature for the world outside their mother's womb.

There are two sides of Poppi's Rule. Many valid points are being made on both sides.Both sides have knowledge and experience of the two different sides.

My heart aches for these families who lose there babies mid term. I have not walked in their shoes. Tia and I crossed that magical 24 week line.

I cannot tell you how many women, families and friends who have shared their sad stories with me. How many tears I've cried for others.Having a healthy full term baby is not a given. No one is immune.

All I know for sure is this, babies are supposed to be born at term which is on average 40 weeks gestation. The only safe place for a baby to grow until then is in their mother's womb.

We can fight for our premmie babies but there is no answer or medical solution to prematurity. There is not one reason for early birth there are hundreds and this means it will always be an outcome.

I think the answer is to unite and work together for all the precious babies who are miscarried, born too soon or born sleeping.

Support and helping each other. Unity is the only way.

Cathryn

Here's an article about the family of Poppi http://www.news-mail.com.au/story/2011/02/18/family-still-mourning-babys-death-bundaberg/

And an interesting article about the difference a week can make http://www.latimes.com/health/boostershots/la-heb-premature-baby-20110218,0,1645424.story?track=rss

Friday, January 14, 2011

Faith

New Years is a fun time. It is a time to start dreaming and setting goals. I always find myself conjuring up ideas and plans for the coming year. Here's what I've been thinking about.

Firstly running. Since my Bridge Run in September I've not been running as my back was protesting and basically making my life a misery. So I stopped running. Took up walking and then ended up doing nothing. Guess what? My back was still making my life a misery! So I'm back running :)Now to complete the City to Surf again with the aim of keeping up with my Bless-ed No.1 son. If you're going to do it then do it properly I say!

Also finish my book. Yes, I know you were thinking that, well, me too! Yes, it will be a priority. I will say nothing further about my book.

Then I have another slightly crazy idea bouncing around my mind. I'm wondering if I can do it. Will it be a success? Working on the idea and concept. Piecing things together and coming up with a plan. Sorry I'm not ready to share my idea yet.

But I will share this. When you need guidance, when you're looking inside and the doubt is creeping up and taking over the idea and ruining your plans. You can find the answer. This is the direct message I received via a pack of Self Care cards the other day-

'Have faith. Faith grows when you act without knowing the end result'

Hmmm, I may just have to take the leap and follow my slightly crazy idea after all!

Oh yeah,and finish my book.
I'll keep you posted :P


Cathryn

Saturday, January 1, 2011

Bless-ed Chloe

Three years later and my New Year has started once again not how I imagined. Am I not learning the lesson?

My beautiful beautiful little dog Chloe left us last night. She was accidentally ran over by a friend shortly before midnight. The horror and pain was instant. The dog I'd bought for my children. The dog I bought on my own and walked through the door and gave them was suddenly unexpectedly gone.

My heart aches. My children cry.

I haven't cried. I have sobbed. Gut wrenching sorrow filled sobs. I am numb. My darling Chloe is gone.

Her husband (the Bless-eds married them last New Years day) Laska sits at the door. He is confused and lost. I look at him and the numb ache remains.

Chloe is in my book. The image I clung to of my homecoming with baby in arms always involved her. Always she would be at the gate on the bright sunny day tail wagging looking up at me and the new baby saying 'Hey you! Where you been? Do you have a new play mate for me?'

My homecoming was not a bright sunny day but a cold dark evening,and yes Chloe was there. At the gate wagging her tail looking up at me.

Everyone loved her.

We are grieving for her.
The tears will flow and then one day stop.
We will always miss her.

Bless-ed Chloe will be forever in our hearts.

Happy New Year,

Cathryn